"The doctor told my husband his suspicions about our daughter having Down syndrome. I wish we had been told together." Tiffany, Mom to Ellie
two easy steps to provide birth diagnosis feedback
Step 1: Write your provider a letter describing your diagnosis experience. For help, you can utilize our letter example (below). Also, please keep in mind recommendations for delivering a Birth diagnosis from the American Academy of Pediatrics Journal:
When possible, the news should be delivered by the OB and Pediatrician together
Both parents should be together in a private room when told and had time to meet their child
Physicians should start the conversation with positive words and avoid offering opinions about the diagnosis
Parents should be provided up-to-date information and national and local resources
Step 2: Mail your letter to your provider. After your letter has been sent, please fill out our feedback form so we know where to send resources.
what we do
DSDN provides your healthcare professional the following resources:
The Joseph P. Kennedy, Jr. Foundation's Understanding a Down Syndrome Diagnosis booklet that is printed and distributed by Lettercase. To learn more about Lettercase, which is part of the National Center for Prenatal and Postnatal Down Syndrome Resource at the University of Kentucky's Human Development Institute, click here.
"How to Deliver a Postnatal Diagnosis of Down syndrome" - A compilation of professional recommendations for delivering a birth diagnosis of Down syndrome.
Resources from State and local Down syndrome associations and networks.