March 15, 2017

What does DSDN mean to me and why do I want to spread the word about it? My daughter, Maddie, is 6 months old. As a parent of a child with Down Syndrome and a social worker by occupation, I immediately turned to the internet for education on DS and support groups.

I cam...

March 15, 2017

I wish I could go back and whisper into my own ear on May 21st, the day after my sweet and perfect Layton was brought into this world, “You’ve hit the jackpot!”. If only I knew then what I know now. I am one of the lucky ones, and DSDN helped me to realize that.

“I thin...

March 14, 2017

I am a person with disabilities. I am deaf, with traumatic brain injury, post-traumatic stress disorder, and manic-depressive (bi-polar) disorder. I was also working as a program founder, manager and career counselor at UC Berkeley when my unborn second child was found...

March 10, 2017

Where were you that day?  That day of your child's diagnosis of Down syndrome.  That day that has forever changed your life and changed your perspective.  I know most of you, including myself, have that day etched in your mind and you will never forget....

March 3, 2017

I asked if it was normal to for expecting mothers to be called into the office the next day to discuss the results of the ultrasound. I should have known that it wasn't. I should have known that when the technician kept asking me to change positions and when I got a ca...

March 3, 2017


They say it takes a village to raise kids. When trying for and planning for kids I never imagined my village would include so many medical professionals. I also could not have pictured a group of women, most of which I have never met, who I would feel so connected wit...

March 3, 2017

When I gave birth to my son Sam in 2012, at first I didn’t know where to turn. I didn’t really know anyone familiar with Down syndrome who could be a support, and I certainly didn’t know much of anything about Down syndrome myself! So, like any frantic new mother, I Go...

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AAP Guidelines - Care of individuals with Down syndrome

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