March 29, 2018

Call me Latke.

This is an open letter to all you fathers who are new to Down syndrome. Just a list of five things I’ve learned so far:

(1) Your wife will join a Facebook group for mommies of kids with Ds. Upon joining, she will instantly become BFFs with 100 people y...

March 29, 2018

There’s this thing.  It happens in the Down syndrome community.  (I think it happens in other places too, but I can only speak to what I know.)

When I started reading blogs and articles written by parents who have kids with Down syndrome, part of me was confused....

March 29, 2018

During the months leading up to Cora's open heart surgery (OHS), I spent a great deal of time looking for testimonials of other parents' experiences.  Of course, I could find information all over the internet about the details of her heart defect and the actual surgery...

March 8, 2018

I read a blog yesterday from a mother of a child with Down syndrome.

“I LOVE MY DAUGHTER BUT I’M NOT READY TO CELEBRATE DOWN SYNDROME.”

I just want to say that I hear you. And I validate you.

SOMETIMES IN OUR SPECIAL NEEDS CIRCLES CERTAIN TYPES OF PEOPLE ARE PUSHED FORWAR...

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