January 16, 2018

I am not really a support group kinda gal. When my first daughter passed away at 4 1/2, I struggled and I still struggle getting through the days with my broken heart. But, I didn’t join a bereaved parent support group. I didn’t think it would help, I thought it would...

Our story started with our third daughter, Isabel, being born on August 17th, 2012.  We found out shortly after her birth that she was showing signs of having Down syndrome.  My husband and I were terrified because we knew nothing about Down syndrome.  In fact, neither...

October 30, 2017

Dear Mama, on the day of your daughters' diagnoses,

It's going to be okay. It really is.

I know you're afraid right now. I know you're thinking, “Is this really happening? And both of them? Why? Why both of them?”

I know you're angry at yourself. Angry that you are upset,...

To Haley and Sienna's Mom,

​​

I​ know​ what you are thinking. Somehow, this is your fault. You pushed for this baby. You fought for this pregnancy. You were scared to death that something would go wrong during labor and it has. You should have just called it a day after...

Dear Me,

Well, after midnight, in the hours after you delivered precious Abraham James, you begged God to take away his Down syndrome. Test results had not yet confirmed Abe’s Trisomy 21 birth diagnosis, but you knew. You knew it would be positive. The words “Down syndr...

Dear Mama,

You prayed that he'd be healthy. You prayed that he'd be a happy, inquisitive, adventurous little boy who loved being outdoors, learning, reading books, meeting people and animals, and music. You prayed that he'd be compassionate, loving and kind. You prayed...

Dear Kristina,

I wanted to write you a note from the future. Eight months from now your life will be completely different. I know it’s hard to imagine joy in this time of sadness, but girl, JOY will return to you tenfold! You always wanted a child set apart from the nor...

Meet Joe Scott, the Down Syndrome Diagnosis Network’s newest board member. Joe is an Instructional Designer at a major university. Joe first got involved in DSDN as a member of the Rockin’ Dad group. He then became an instrumental member of DSDN’s Parent Advisory Counc...

Introduction

For too long, people with disabilities could not save for the future out of fear of losing their public benefits. Advocates and organizations such as the National Down Syndrome Society (NDSS) fought hard to change this, resulting in the federal ABLE Act and...

Dear Me,

You can’t see it now, but it’s OK. Actually, it’s more than OK. You’ve honestly hit the jackpot. I know that sounds crazy, but just wait.

Right now your vision is clouded. All you see is a world of closed doors. You’re asking yourself if you’ll ever get to take...

Please reload

Featured Posts

AAP Guidelines - Care of individuals with Down syndrome

September 18, 2018

1/10
Please reload

Recent Posts

November 21, 2019

April 2, 2019

Please reload

Archive
Please reload