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September 30, 2016


Dear Dr. Craft,

I am writing you this letter as a heartfelt thank you for the support you have given me since the birth of my daughter almost 4 years ago.

When our daughter Ellie was born and we received her diagnosis of Down syndrome, our world was rocked. The way the...

September 30, 2016

Dear Medical Professionals,
 

I am writing to share my diagnosis story with you. Each parent has their diagnosis story, the time in which Down syndrome became a part of their family, but I have never really discussed mine. Unlike so many fellow parents, I haven’t writte...

September 30, 2016


Dear Geneticist,

When you walked into my hospital room that early morning, I had no idea how long your list of credentials was or how many medical organizations you belonged to. I had no idea that you were the chief of the largest genetics clinic in the country. I didn...

September 30, 2016

Dear Doctor,

I wish I could address you more correctly, but unfortunately I don’t know your name. I don’t think you gave it to me. I also don’t know what type of doctor you were, because I don’t think you told me. To be honest, I’m not even sure you’re a doctor, because...

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April 2, 2019

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AAP Guidelines - Care of individuals with Down syndrome

September 18, 2018

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