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July 10, 2017

Almost four years ago, we were thrown into the world of Down syndrome, following the birth of our son, Liam. We had no idea that he was rocking an extra chromosome so we were completely shocked. As we struggled to digest the news, we quickly realized we were clueless,...

DSDN asked its member mom bloggers to tackle the subject of Early Intervention the month of July. Every week you will see a blog post on our mom's thoughts and experiences with EI in regards to their child with Down syndrome. All opinions expressed are their own....

February 27, 2017


Being told your newborn baby has Down syndrome can be frightening and  isolating.

We didn’t have any clue that Oliver had Down syndrome until about 3 hours after he was born. We were given a bunch of scary statistics and potential issues that he could face. We fel...

I think it will always be easy to go back to that day.  The minutes ticked away relentlessly as Matt and I kept checking the clock.  The girls excitedly looked at us to why it was taking so long.  We had no idea what was behind those doors.  It took only moments for ou...

There are certain life moments that cause you a moment’s pause to reflect. This month has been a reminder of how important our DSDN work is, even when it hurts.

Memorial gifts became part of what we do soon after we formalized our organization. We had already formed a l...

October 8, 2016

Dear Doctor, 

It was four years ago on this day that we briefly meet, and I mean briefly. I had just given birth to our second child, a little boy we named Carl, and was waiting for him to return from the nursery.  Then you walked in, quickly introduced yourself and the...

September 30, 2016

Dear Doctor,

It's been over four years since you changed my life completely. And you might not even remember who I am. I was pregnant with my second child, a little boy. I had been referred to you by my obstetrician, because our nuchal translucency screening had come ba...

September 30, 2016


Dear Dr. Craft,

I am writing you this letter as a heartfelt thank you for the support you have given me since the birth of my daughter almost 4 years ago.

When our daughter Ellie was born and we received her diagnosis of Down syndrome, our world was rocked. The way the...

September 30, 2016

Dear Doctor,

You were highly recommended by my friends and coworkers, so when I got my positive pregnancy test one morning in March, I called you right away. I had one healthy baby and three miscarriages, and wanted to be seen right away; you didn't disappoint. I had an...

September 30, 2016

Dear Medical Professionals,
 

I am writing to share my diagnosis story with you. Each parent has their diagnosis story, the time in which Down syndrome became a part of their family, but I have never really discussed mine. Unlike so many fellow parents, I haven’t writte...

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April 2, 2019

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AAP Guidelines - Care of individuals with Down syndrome

September 18, 2018

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