helpful links

Down Syndrome Pregnancy is a program administered by the National Center for Prenatal and Postnatal Resources at the University of Kentucky’s Human Development Institute. We provide honest, compassionate, medically-reviewed, and informative support for those preparing for the birth of a baby with Down syndrome.

The International Down Syndrome Coalition (IDSC) is dedicated to helping and advocating for individuals with Down syndrome from conception and throughout life. We promote the dignity and respect of individuals with DS and assist the families who love them. We provide support, education and connection to other families as well as to local resources. 

The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical Care, Education and Advocacy.

The mission of the Jerome Lejeune Foundation USA is to provide research, care, and advocacy for people with genetic intellectual disabilities. This is achieved by conducting, promoting, and funding therapeutically oriented research; by assisting in the development of healthcare services; and by serving as an advocate in a spirit of respect for the dignity of all human persons.

Down Syndrome International (DSi) is a UK based international charity, comprising a membership of individuals and organisations from all over the world, committed to improving quality of life for people with Down syndrome worldwide and promoting their inherent right to be accepted and included as valued and equal members of their communities.

book for families

Read information, stories and resources for families raising a child with Down syndrome from pregnancy through adulthood.

The National Down Syndrome Congress (NDSC) is a membership-sustained not-for-profit organization dedicated to an improved world for individuals with Down syndrome. Founded in 1973, we are the leading national resource of support and information for anyone touched by or seeking to learn about Down syndrome, from the moment of a pre-natal diagnosis through adulthood.

The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.  The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.

The National Down Syndrome Adoption Network provides information to birth families who may be seeking alternatives to parenting as they prepare for the arrival of their child. Making an adoption plan for a child with Down syndrome is a loving choice and can be the right choice for some families.  The NDSAN also provides support to families who wish to adopt a child with Down syndrome.

International Mosaic Down Syndrome Association (IMDSA) is designed to provide support, information and research to any family, individual or professional whose life has been affected by mosaic Down syndrome.

book for young siblings