Medical Outreach: where to start?
Are you looking to impact the diagnosis conversation locally? We have prepared the best tools for you to ensure all new parents with a diagnosis have connections and information.
Consider these steps:
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Contact your local Down syndrome organization and join their efforts to reach local providers.
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Review the toolkits offered by Lettercase on how to contact and develop relationships with medical providers.
- Request DSDN materials
- Connect families to local and national resources
Additional resources to enhance your work:
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MDSC First Call - trained parent mentors are available, to offer your new parents, 24/7 to listen, share, answer questions, and provide valuable information. This includes prenatal and postnatal diagnoses, as well as those that want to learn more about Down syndrome to inform their path forward.
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National Down Syndrome Adoption Network -registry of families who are ready and want to adopt a child with Down syndrome
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Videos
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A Diagnosis Can Go Well - words from practitioners to parents at the time of diagnosis as told by grateful parents
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Diagnosis Realities - words from practitioners at the time of diagnosis as told by disappointed parents
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Prenatal Experience Survey - DSDN surveyed 300 new moms to learn more about their experience
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Case Study: A patient experience with noninvasive prenatal screens
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