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Dear Future Mom

Unexpected: Diagnosis stories by Parents

You may be feeling sad, scared, angry, confused or anxious.

 

We understand.  

 

DSDN is supporting the work of nearly 100 families around the world.  Parents have written stories about the diagnosis phase of their journey.  It is full of raw, honest thoughts and emotions.  In sharing this perspective, we hope that you will find parts of your story and feel comfort in knowing you are not alone.  We are here to support!

understanding prenatal screening

Understanding Prenatal Screening and Testing for Chromosome Conditions, created by Lettercase, is specifically for patients who are being offered testing and want more information about the different kinds of testing and the different conditions for which they are being tested.

While most people have heard of Down syndrome, a lot of people are not familiar with what a diagnosis can mean for their child.

 

Please take a moment to learn more by reading a comprehensive guide called "A Promising Future Together" by the National Down Syndrome Society.

guide for new and expectant parents

The Parent's Guide To Down Syndrome

This new book offers real stories, practical information and lots of resources for families from pregnancy through adulthood. Cowritten by our Executive Director, Jen Jacob, many rockin' family stories/experiences are shared throughout.  From the early days with a new diagnosis and throughout your child's life, you will find topics

 

 

Availble to order online  and in book stores near you.

prenatal resources

If you have just received a prenatal diagnosis, please check out "Understanding a Down syndrome Diagnosis" a free online booklet distributed by Lettercase.  Here you can learn more information about Down syndrome.

Down Syndrome Pregnancy provides a free downloadable, practical guide for expectant moms, Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome, along with resources for family members.

down syndrome prenatal testing pamphlet

Check out this Prenatal Testing Pamphlet made by the National Down Syndrome Congress and Global Down Syndrome Foundation.

A Look Ahead

There is a new generation of young adults that have greatly benefited from early intervention and inclusive classrooms. These young adults are changing the way society views Down syndrome. Many of these individuals are attending college, living independently, getting married and have paid positions working in the community. More and more people with Down syndrome are working in professions as teachers, medical assistants, actors, artists and musicians. The life expectancy for people with Down syndrome has increased dramatically in recent decades – from age 25 in 1983 to 60 today. Adults with Down syndrome are at an increased risk for Alzheimer’s disease. Currently, medical advances are helping to combat the onset of the disease.

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