Congratulations on your new or expected arrival!
view our slideshow for facts and information
Dear Future Mom
Unexpected: Diagnosis stories by Parents
You may be feeling sad, scared, angry, confused or anxious.
DSDN is supporting the work of nearly 100 families around the world. Parents have written stories about the diagnosis phase of their journey. It is full of raw, honest thoughts and emotions. In sharing this perspective, we hope that you will find parts of your story and feel comfort in knowing you are not alone. We are here to support!
understanding prenatal screening
Understanding Prenatal Screening and Testing for Chromosome Conditions, created by Lettercase, is specifically for patients who are being offered testing and want more information about the different kinds of testing and the different conditions for which they are being tested.
While most people have heard of Down syndrome, a lot of people are not familiar with what a diagnosis can mean for their child.
Please take a moment to learn more by reading a comprehensive guide called "A Promising Future Together" by the National Down Syndrome Society.
guide for new and expectant parents
The Parent's Guide To Down Syndrome
This new book offers real stories, practical information and lots of resources for families from pregnancy through adulthood. Cowritten by our Executive Director, Jen Jacob, many rockin' family stories/experiences are shared throughout. From the early days with a new diagnosis and throughout your child's life, you will find topics
Availble to order online and in book stores near you.
If you have just received a prenatal diagnosis, please check out "Understanding a Down syndrome Diagnosis" a free online booklet distributed by Lettercase. Here you can learn more information about Down syndrome.
Down Syndrome Pregnancy provides a free downloadable, practical guide for expectant moms, Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome, along with resources for family members.