real stories

Josee Hope

This is Josee Hope. She was diagnosed with hydrops at 13 weeks gestation via ultrasound. A Down syndrome diagnosis was confirmed a few days later by CVS and her parents were advised that she was in heart failure and her prognosis was grim. All of her heart complications resolved in utero before her birth. She is now 13 months old and has no health issues. She loves attention from her big siblings and is currently working on learning to crawl and loves giving smooches.

Charles

This is Charles. He was diagnosed with a Complete AV Canal defect at 20 weeks gestation and an amniocentesis confirmed Trisomy 21 shortly after. He was born at 37 weeks in June 1999. Charles had open heart surgery at six months and again at six years to close a leaky valve. He now sees a cardiologist just once a year. Today, he competes in basketball and track for Special Olympics.  He loves wrestling with his two brothers, cats, The Beatles and has many, many friends.

Luca

This is Luca. He has had multiple medical concerns, most of which resolved early.   At 8 months of age, he was diagnosed with a catastrophic form of epilepsy called Infantile Spasms (IS). Currently he is 16 months old and has been seizure free for 4 months.  He has regained nearly all of the skills he lost to his IS, his family's favorite of which is his beautiful smile and infectious belly laugh. He loves playing with his sister, snuggling with mom and dad, and smiling at all the family and friends who have loved and supported him from day one.

 

Aiden

This is Aiden. His parents had a prenatal diagnosis and the doctor advised them to consider termination. He was born 6 weeks early and weighed in at 4 pounds. Aiden spent a month in the Neonatal Intensive Care Unit to mature and grow. Since that time he has developed into a healthy boy.   At nearly 3 years old, Aiden loves music and Elmo! His family adores him and his smile melts his mom's heart everytime. He has a special spirit and is a very loving little guy.

 

Violette

This is Violette. At birth, her parents found out in a very lovely way that Violette had Down syndrome with her OB's words "She is beautiful, and she is perfect and I am quite certain she has Down syndrome." Violette has minor heart defects that are monitored. Today, she is six years old and loves to travel, having been to Hawaii and Alaska in 2013. She loves school, and has been in productions of 101 Dalmatians and The Aristocats.

 

Megan

This is Megan. Her parents found out at birth that she had Down syndrome. She is a healthy young woman who is extremely involved in her school and church community. She is a cheerleader at her high school where she and Eli (also pictured) are on the cross country, swim and track teams. They attend dances together and are fully included in their school. Megan has achieved her blue belt in Tae Kwon Do and will be a black belt next year.