Dear Me- Welcome to the Most Unexpected Journey of your Life
Dear 2015 Diany,
Hi, it’s 2017 Diany. At this moment, Lili is falling asleep and I just wanted to tell you a couple of things about her. Right now, you are crying in front of the Statue of Liberty because the news was confirmed, Liliana is a girl and she has Down syndrome. You can’t stop crying because of how afraid you are, but lucky you, Robbie and Oski are by your side.
The grieving has begun, you can’t really picture your baby anymore, all you can think of is Down Syndrome. There are many reasons why you are scared: Will your family accept her and love her? Is everybody going to call her the R-word? Is everybody going to be mean to her and bully her?
Well, welcome to the most unexpected journey of your life, fasten your seatbelt and enjoy the ride. Liliana is 20 months now and is a very active child. Your family has loved Liliana since you shared the news and they expect daily picture(s) as they can’t get enough of her. She looks exactly like you when you were a baby. From now, on, every time you rub your belly, you are going to pray for a healthy and strong baby, and indeed she is strong! She can throw every toy or food on her plate far, far away!
She is very healthy too, she gets a cold every now and then but nothing major, and every day we are thankful for that. She has three holes in her heart, PDA, ASD, VSD; don’t worry, you will learn about these terms later on, every single heart defect is healing on it’s own.
She is funny like you asked for, and ever since she was born, she has been loved, kissed, and hugged more times than you can even imagine. Life with Liliana is normal: a baby learning new skills every single day, with a giant support group by your side for extra help. Down syndrome does not define her, Liliana is gorgeous and we can’t get enough of her! Best journey so far, so wipe down those tears, embrace the diagnosis, and be confident! We got this!
Diana McLuckie is a 29-year-old Colombian by blood and Marylander by love. Liliana is her daughter. To follow Liliana’s journey visit: www.lilimcawesome.com and her Instagram @lilimcawesome.
This letter is part of DSDN's October Down Syndrome Awareness Month campaign. We asked our members to write a letter to themselves during the time they received the diagnosis. Do you know a parent with a child under the age of 4 who needs connections and support? Let DSDN help and get started here.