You are not alone. Do not be afraid. Do not be sad. Do not be discouraged. Do not be defeated. Your life is not over. Your life is just beginning.
Your baby boy will be loved – and by so many people! He will have THE BEST smile. He will have his hard days – and so will you. He will make you laugh. He will get sad. He will hit his milestones. He will get sick. He will go to school. He will be happy. He will have a full life, but he’ll need your help. He needs you to be his biggest cheerleader and champion. He’s just a boy who needs you: His mother.
A million things raced through your mind as you received his diagnosis. You could barely catch your breath. No doubt you were hit with feelings of devastation and confusion, left wondering why and how on earth this could have happened to you – at 29 years old, nonetheless. And guess what, every-single-thing you are feeling is OK.
The questions you never imagined asking yourself? The things you never imagined wondering? They’re okay. There is no right. There is no wrong. It’s to be expected when you get hit with the unexpected.
Sure, life may be taking a bit of a detour from the one you imagined for yourself, but that’s the beauty of it. It doesn’t follow one path. It takes you down twists and turns and tunnels and hills. A “perfect” life is promised to no one. A “perfect” life does not exist. A perfect life is whatever YOU make it.
Let yourself grieve and feel the sadness and heartbreak. It’s real. And it deserves to be felt. But get it out of your system because your little boy is about to introduce you to a love couldn’t have dreamed of; a level of happiness you never knew existed; a sense of protection you’ve never experienced; a hunger to learn and advocate that can’t be satisfied; and a network of people that will hold your hand every step of the way.
There’s a reason they call us the Lucky Few.
Bio: My name is Caroline Queen and we knew our amazing little guy, Bennett, was rockin’ an extra chromosome before he made his appearance on December 14th, 2016. Our family, including my husband Kyler and bulldog Ziggy, live in Chicago and while we are still new on our journey with Down syndrome, we are blessed to be members of this beautiful and incredible community
This letter is part of DSDN's October Down Syndrome Awareness Month campaign. We asked our members to write a letter to themselves during the time they received the diagnosis. Do you know a parent with a child under the age of 4 who needs connections and support? Let DSDN help and get started here.