November 21, 2019

When 2018 Rockin' Mom, Lauren Shelor, was pregnant, she told her brother of Forged Film Company that she wanted to tell their story in a way that offered hope to new parents receiving a Down syndrome diagnosis and preserved her heartfelt sentiments to her son....

November 15, 2019

As a part of the 2019 DSDN Rockin' Mom™ Retreat sponsorship package, we are pleased to share this interview with: Myriad Women's Health

Tell us about your organization/company:

Myriad Women’s Health has a keen focus on offering high-quality genetic screening, including n...

This month marks a big transition for DSDN! It is bittersweet for us to announce that Heather Bradley will be stepping down as our board president, but we are excited to announce that Melissa Shutwell will take over as president. Since co-founding DSDN in 2014, Heather...

September 18, 2018

These guidelines were developed and designed to be used for the care of those with Down syndrome. Consider using this tool with your team of medical professionals at regular check ups.

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August 31, 2018

We couldn't have our Rockin' Mom Retreat without our sponsors! Here’s more information from our friends at ABLEnow, a sponsor.

Introduction

For too long, people with disabilities could not save for the future out of fear of losing their public benefits. Advocates and org...

June 25, 2018

We are so proud to partner with Jack's Baskets and even more thrilled to see this piece from its founder, Carissa Carroll, published in the AAP.  

From the article, When Bad News Isn’t Necessarily Bad: Recognizing Provider Bias When Sharing Unexpected News

“Our words are...

March 29, 2018

Call me Latke.

This is an open letter to all you fathers who are new to Down syndrome. Just a list of five things I’ve learned so far:

(1) Your wife will join a Facebook group for mommies of kids with Ds. Upon joining, she will instantly become BFFs with 100 people y...

March 29, 2018

There’s this thing.  It happens in the Down syndrome community.  (I think it happens in other places too, but I can only speak to what I know.)

When I started reading blogs and articles written by parents who have kids with Down syndrome, part of me was confused....

March 29, 2018

During the months leading up to Cora's open heart surgery (OHS), I spent a great deal of time looking for testimonials of other parents' experiences.  Of course, I could find information all over the internet about the details of her heart defect and the actual surgery...

March 8, 2018

I read a blog yesterday from a mother of a child with Down syndrome.

“I LOVE MY DAUGHTER BUT I’M NOT READY TO CELEBRATE DOWN SYNDROME.”

I just want to say that I hear you. And I validate you.

SOMETIMES IN OUR SPECIAL NEEDS CIRCLES CERTAIN TYPES OF PEOPLE ARE PUSHED FORWAR...

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AAP Guidelines - Care of individuals with Down syndrome

September 18, 2018

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