This privacy policy sets out how the Down Syndrome Diagnosis Network (DSDN) uses and protects any information provided to it when you use this website, donate money to the organization, place an order, or otherwise participate in DSDN programs and services as a volunteer or recipient (“member family”).


What we collect
We may collect the following information:


In the course of accepting and processing financial donations via dsdiagnosisnetwork.org, we may collect:

  • Your name 

  • Your contact information including email address, mailing address, and phone number

  • Credit card information including credit card numbers, credit card expiration date, CV/security code, billing address, contact telephone, and any other details required for credit card payment processing and validation

We require this information to process donation payments swiftly by credit card online.


In the case of serving member parents with DSDN programs and services via mail, Facebook, and the dsdiagnosisnetwork.org website, we may collect, and/or DSDN board officers, employees, and volunteers may have visibility to:

  • Your name

  • Your Facebook profile information (subject to your privacy settings and the privacy policies of Facebook as well as to DSDN)

  • Your mailing address

  • Your personal connection to Down syndrome

  • Your child’s name, date of birth, age, and the fact that the child has been diagnosed with Down syndrome

  • Your age, gender, and geographic location

  • In some cases, contact information for one or more hospitals where you can be reached

We require this information to execute on programs such as our welcome gift and care package program and our member gift exchange.


In the case of serving organizations in providing resources for their medical and/or new parent outreach via mail, Facebook, and the dsdiagnosisnetwork.org website, we may collect, and/or DSDN board officers, employees, and volunteers may have visibility to your organization’s contact information including:

  • Your address

  • Email address

  • Your Organization’s outreach activities


In the case of general website usage on dsdiagnosisnetwork.org:

  • No information is collected beyond that described in the use cases above, unless explicitly stated at time of collection. For information on how we use cookies to analyze website traffic, please see the next section below. 


What we do with the information we gather
DSDN uses the information it collects for the explicit purposes stated above.  In addition, we may use the collected information to support:

  • Internal record keeping, specifically to promote compliance to IRS 501(c)(3) charitable tax-exempt status regulations

  • Improvement of our services to our constituent families

  • We may occasionally use collected email addresses to send promotional emails about fundraising campaigns, member parent events, or other information which we think you may find interesting using the email address which you have provided.  Any such emails will include the option to opt-out of receiving future communications from us via email.


DSDN does not, under any circumstances, share, distribute, lease, or sell any personal information of member families, financial donors, or website visitors. Information collected to facilitate member services or financial donations is used only for the purposes expressly stated in this document. 


We are committed to ensuring that your information is secure. In order to prevent unauthorised access or disclosure we have put in place suitable physical, electronic and managerial procedures to safeguard and secure the information we collect online. 

For processing online payments, DSDN employs the services of PayPal (privacy policy here: https://www.paypal.com/us/webapps/mpp/ua/privacy-full). We do not store any credit card information.


How we use website cookies
A cookie is a small file which asks permission to be placed on your computer's hard drive. Once you agree, the file is added and the cookie helps analyse web traffic or lets you know when you visit a particular site. Cookies allow web applications to respond to you as an individual. The web application can tailor its operations to your needs, likes and dislikes by gathering and remembering information about your preferences. 


We use traffic log cookies to identify which pages of Dsdiagnosisnetwork.org are being used. This helps us analyse data about web page traffic and improve our website in order to tailor it to visitor, donor, and member needs. We only use this information for statistical analysis purposes and then the data is removed from the system.


Overall, cookies help us provide you with a better website, by enabling us to monitor which pages you find useful and which you do not. A cookie in no way gives us access to your computer or any information about you, other than the data you choose to share with us.

You can choose to accept or decline cookies. Most web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. This may prevent you from taking full advantage of the website.

Links to other websites

Our website may contain links to other websites of interest. However, once you have used these links to leave our site, you should note that we do not have any control over that other website. Therefore, we cannot be responsible for the protection and privacy of any information which you provide whilst visiting such sites and such sites are not governed by this privacy statement. You should exercise caution and look atthe privacy statement applicable to the website in question.


Controlling your personal information
We will not sell, distribute or lease your personal information to third parties unless we have your permission or are required by law to do so. We may use your personal information to send you promotional information about third parties which we think you may find interesting.

You may request details of personal information which we hold about you under the Data Protection Act 1998. A small fee will be payable. If you would like a copy of the information held on, you please email us.


If you believe that any information we are holding on you is incorrect or incomplete, please email us as soon as possible. We will promptly correct any information found to be incorrect.


Changes to this policy
If we decide to change our privacy policy, we will post those changes on this page. Policy changes will apply only to information collected after the date of the change. This policy was last modified on August 20, 2015.


Questions and feedback
We welcome your questions, commens, and concerns about privacy. Please contact us with any feedback regarding privacy or any other issue.


By using our site and providing information to make a financial donation or participate in DSDN programs and services, you consent to this privacy policy.