DSDN Day: May 1
A Celebration of Connection, Community, and Support
What is DSDN Day?
DSDN Day is a day to bring our community together like never before—a day to celebrate the power of connection, the strength of our network, and the impact of supporting families from day one of a Down syndrome diagnosis. On May 1 we recognize this special day to celebrate how far we’ve come, connect with each other in meaningful ways, and ensure that no parent walks this journey alone.
Why do we celebrate?
For over a decade, DSDN has been there for families from the earliest moments of a Down syndrome diagnosis through the years that follow, offering resources and a lifeline of support. DSDN Day is about honoring that support system, strengthening our bonds, and spreading awareness so that more families can find the connection they need. It’s an opportunity to reflect on our growth, the work behind the scenes, and the powerful stories of families who find strength, connection, and hope within this community.
2025 DSDN Day Live Replay
Segment 1: Rockin' Parent Spotlight with Jillian Benfield
Segment 2: How We Started with Heather Bradley and Jen Jacob
Segment 3: Online Support & the DSDN App with Dan Szostek, Navara Cannon, & Shannon Prausa
Segment 4: Medical Outreach with Hannah Pascucci & Jenny Di Benedetto
Segment 5: DSDN Board of Directors with Dr. Cassandra Drake and Tony Towicki
Segment 6: Rockin' Parent Spotlight with Etsuko James
Segment 7: Diversity, Equity, Inclusion and Accessibility with Brandy Coleman & Sarah Mesa-Haas
Segment 8: Local Partnerships with Lauren Young
Segment 9: Rockin' Parent Spotlight with Katie Burwell
Segment 10: DSDN Rockin' Retreats with Amanda Brunning & Jordan Heberlein
Segment 11: Rockin' Family Fund with Becky Bausman
Segment 12: Rockin' Parent Spotlight with Tony Nowicki
Segment 13: Wrap Up and Celebration with Melissa Shutwell, Patricia Nesbitt, & Jen Jacob
Why DSDN Day matters!
DSDN Day is about more than just fun events and activities—it’s about recognizing the journey and lifting each other up. It’s about making sure that every family facing a Down syndrome diagnosis knows they are never alone. By participating, sharing, and supporting, we continue to build a community where every parent feels seen, supported, and empowered.
What happens on DSDN Day?
FOR DSDN MEMBERS (Rockin' Moms and Dads):
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Virtual Zoom Conversations: Join live, moderated discussions with fellow parents who understand your journey. Share stories, ask questions, and offer support to others.
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National Playdates and Meetups: Whether in person or virtually, this is your chance to meet other Rockin’ families outside of social media and make lasting connections.
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Exclusive DSDN Day Challenges in the App: Participate in fun and engaging challenges designed to help you connect with the community, share experiences, and celebrate DSDN Day with a little friendly competition!
FOR THE ENTIRE COMMUNITY:
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Support & Fundraising Opportunities: Help us continue our mission by giving back through donations and fundraising efforts on DSDN Day.
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DSDN Live Streamathon: Watch the 2025 Replay!Thank you for joining us for an incredible DSDN Day! If you missed the live event—or just want to experience it again—you can now watch the full celebration on YouTube. Check out all the inspiring moments you may have missed.🎥 Watch Now
