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About Us

DSDN is the largest national organization supporting new and expectant parents with a Down syndrome diagnosis.


The mission of the Down Syndrome Diagnosis Network is to connect, support, and provide accurate information to parents - and the medical professionals who serve them - from the time of diagnosis through age 3 while fostering the opportunity for lifelong connections. Our vision is that every Down syndrome diagnosis will be delivered in an unbiased, factual, and supportive way every time and that families can quickly find meaningful connections.


In early 2013, DSDN co-founder, Jen Jacob, began a small, private online group for moms to new babies with Down syndrome. That group allowed moms from across the nation and around the world to connect and support each other through the uncharted territory of their new diagnosis. Discussions in the group highlighted a large issue around the delivery of a Down syndrome diagnosis. In early 2014, DSDN co-founder, Heather Bradley, and Jen began to work together on the framework of an organization focused on the diagnosis experience and parental support. The Down Syndrome Diagnosis Network (DSDN) was launched on World Down Syndrome Day, March 21, 2014. Today, our focus remains the same — improving the diagnosis experience for parents and providing a framework of support. We host over 22,000 parents in our private, online groups and are recognized by the American Academy of Pediatrics as a preferred resource for expectant and new families.

Since 2014, DSDN has been supporting families and helping them to find connections and information.  Our staff and volunteers ensure that we are able to keep our mission our number one priority. DSDN is the largest national organization supporting families with a new Down syndrome diagnosis.


DSDN does not discriminate on the basis of race, gender, religion, sexual orientation, or disability.

​Meet our DSDN Team

​Annual Reports

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