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Find Resources

We have compiled a variety of resources for parents to access at each stage of raising a child with Down syndrome. Children with Down syndrome thrive with the right support, and early access to quality medical care makes a meaningful difference. Navigating appointments, therapies, and specialists can feel overwhelming — this section is here to help you understand what to look for and where to turn.

Raising a child with Down syndrome is rich and rewarding — and it can also come with real financial and logistical questions. You don’t have to figure this out alone. There are programs, protections, and professionals designed specifically to help families like yours.

Down Syndrome Baby

Resources to help navigate a confirmed or likely Down syndrome diagnosis and pregnancy. 

Resources for parents just starting their journey raising a child with Down syndrome.

A curated the list of resources to help you and your child with Down syndrome prepare for the school year.  

This is a go-to for all things related to raising a child with Down syndrome, based on feedback from parents. 

Mentorship Program

In partnership with Eunie’s Buddies, we connect expectant and new parents to experienced parent mentors for personalized, one-to-one support. 

What is a parent mentor?

A parent mentor is someone who has received the same Down syndrome diagnosis you have — and come through it. Through our partnership with Eunie's Buddies, DSDN matches expectant and new parents with trained mentors who offer real, and lived experience.

Who can get matched?

The mentorship program is open to any expectant or new parent who has received a confirmed or likely Down syndrome diagnosis. Moms and dads are both welcome. The program is FREE.

How to connect?

Click the Mentorship Program link to be connected through Eunie's Buddies. You'll be paired one-on-one with a mentor who understands your experience — because they've lived it. 

Health Supervision Guidelines

AAP Health Guidelines

Guidelines for Health Supervision for children with Down syndrome. This can be a key document to review with your care team. 

How to use these guidelines

You can use them to ask informed questions, make sure nothing gets missed at each visit, and advocate confidently for your child's care at every stage.

Parent Webinar Series

DSDN's free Parent Webinar Series covers the topics parents need most in the early years — from navigating pregnancy with a Down syndrome diagnosis, to understanding AAP health guidelines, Early Intervention, IEPs, speech therapy, genetic counseling, and more. Past sessions have featured experts from NDSS, NDSC, and leading specialists in the Down syndrome community. All recordings are available to watch at any time, so you can learn at your own pace and revisit them whenever you need them.

​​​​​​​​​​​World Down Syndrome Day Resources

A curated list of DSDN resources to help you prepare for World Down Syndrome Day (WDSD) each March.​​

Not sure where to start?

 

Every family's journey with Down syndrome is different — and it's okay not to know which resource you need first. Join the DSDN community, tell us where you are, and we'll help you find your way.

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