Health & Medical Care Resources for Families
Individuals with Down syndrome have unique healthcare needs that change throughout life. Fortunately, several organizations have developed evidence-based guidelines to help families and healthcare providers navigate recommended screenings, evaluations, and preventive care.
These guidelines can help you:
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Understand recommended health screenings
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Prepare for medical appointments
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Advocate for appropriate care
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Monitor health throughout different life stages
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Stay informed about current best practices
While every individual is unique, these resources provide a valuable framework for ensuring comprehensive care.
Pediatric Health Supervision Guidelines
American Academy of Pediatrics (AAP)
The AAP Health Supervision Guidelines are considered the standard for medical care of children and adolescents with Down syndrome. The guidelines include recommendations from the prenatal period through age 21 and cover topics such as:
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Heart health
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Hearing and vision screenings
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Thyroid monitoring
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Sleep apnea screening
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Development and early intervention
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Behavioral and mental health
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Transition to adulthood
An electronic version can be accessed here:
Diagnosis Support Resources
A diagnosis often comes with an overwhelming amount of medical information. DSDN helps bridge the gap between clinical care and family support by providing:
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Private online support groups
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Peer connections with experienced parents
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Educational webinars
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Resources for expectant and new parents
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Information for medical professionals
Medical Condition Support Groups
in the DSDN App
When your child faces a medical condition or diagnosis beyond Down syndrome, it can be helpful to connect with families who truly understand. Our medical condition support groups provide a welcoming community for sharing experiences, resources, and encouragement.