Find the Support that Fits Your Needs
Whether you are navigating a new diagnosis or looking for ongoing guidance, we’ve gathered trusted resources to support you at every stage.
Choose What You Need Right Now:
Resources to help navigate a confirmed or likely Down syndrome diagnosis and pregnancy.
Resources for parents just starting their journey raising a child with Down syndrome.
Resources for parents just starting their journey raising a child with Down syndrome.
We are happy to connect you directly with a Down syndrome organization in your local area.
Trusted information to help you understand your child’s medical and developmental needs and next steps.
A curated the list of resources to help you and your child with Down syndrome prepare for the school year.
This is a go-to for all things related to raising a child with Down syndrome, based on feedback from parents.
Ways to Get Support Right Away
Connect 1:1 with a Parent Mentor
Get matched with a trained parent who understands what these early days can feel like and is there to support you.
What is a parent mentor?
A parent mentor is someone who has received the same Down syndrome diagnosis you have. Through our partnership with Eunie's Buddies, DSDN matches expectant and new parents with trained mentors who offer real, and lived experience.
Who can get matched?
The mentorship program is open to any expectant or new parent who has received a confirmed or likely Down syndrome diagnosis. Moms and dads are both welcome. The program is FREE.
How to connect?
Complete the application to request a mentor. You'll be paired one-on-one with a mentor who understands your experience — because they've lived it.
Join the DSDN App
Access online parent support groups, real conversations, and trusted resources in one place.
What is a the DSDN App?
The DSDN Rockin' Parents App is a free, ad-free, moderated community for parents of children with Down syndrome. Whether you are navigating the early days after a diagnosis, or further along, our supportive parent network ready to support you.
Who can join?
The DSDN App is for parents and legal guardians of children with Down syndrome, of all ages. We also have loss groups for bereaved parents. The app is free, private, and secure for all users.
How to connect?
You can download the app on the App Store or on Google Play. Once you've completed your profile, you'll be able to join any of our groups within the app.
Additional Resources
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About Down Syndrome
A comprehensive guide from the National Down Syndrome Society.
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Parent Webinar Series
DSDN's free Parent Webinar Series covers the topics parents need most in the early years — from navigating pregnancy with a Down syndrome diagnosis, to understanding AAP health guidelines, Early Intervention, IEPs, speech therapy, genetic counseling, and more. Past sessions have featured experts from NDSS, NDSC, and leading specialists in the Down syndrome community. All recordings are available to watch at any time, so you can learn at your own pace and revisit them whenever you need them.
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World Down Syndrome Day Resources
A curated list of DSDN resources to help you prepare for World Down Syndrome Day (WDSD) each March.
Children with Down syndrome thrive with the right support, and early access to quality medical care makes a meaningful difference.
Raising a child with Down syndrome is rich and rewarding — and it can also come with real financial and logistical questions. Navigating appointments, therapies, and specialists can feel overwhelming. You don’t have to figure this out alone. There are programs, protections, and professionals designed specifically to help families like yours.
