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Support for Every Family.
Connection for Every Journey.

Find compassionate Down syndrome support for parents through DSDN. Get help after a new diagnosis, join parent support groups, and connect with families who understand.

Down Syndrome Family

You Don’t Have to Face a Down Syndrome Diagnosis Alone

At the Down Syndrome Diagnosis Network (DSDN), we connect parents across the world who are navigating a new or recent Down syndrome diagnosis. From the first day to every milestone, we’re here with support, understanding, and community.

Pregnancy Groups

43

Pregnancy &

Birth Groups

Medical Condition Groups

28

Medical
Condition Groups

Family Identity Groups

31

Parent & Family
Identity Groups

Down Syndrome Dad

Parenting a child with Down syndrome is a journey best shared. DSDN connects moms and dads with other families who truly understand — offering real-time support, guidance, and friendship through every stage in private, moderated groups.

Parent Support Groups

Find Your People — Parent Support Groups for Every Journey

Parenting a child with Down syndrome is unique — but it’s never something you have to do alone. DSDN offers online and local communities where parents find friendship, understanding, and encouragement.

Connections for Every Family:

  • Rockin’ Moms & Dads – year-based groups for every stage of parenting.
     

  • Cultural & language-specific groups for Black, Hispanic, Indigenous, and Asian/South Asian families.

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  • Medical condition groups for parents whose children have additional health needs related to Down syndrome, such as heart conditions, vision concerns, or GI issues.

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  • Specialized groups for single parents, adoptive families, large families, and more.
     

  • Events & retreats that build lifelong bonds and renewal.

Down Syndrome Mom

New Diagnosis Help

A Down syndrome diagnosis can feel overwhelming, but help is here. Our new diagnosis resources guide parents from uncertainty to connection — with accurate information, real stories, and people who truly get it.

Immediate Support After a Down Syndrome Diagnosis

If you’ve just received a Down syndrome diagnosis, you are not alone. Our New Diagnosis Support Program helps parents process, learn, and connect with others walking the same journey.

New Parent Support Consists of:

  • Private, moderated groups for expectant parents and by your baby’s birth year.
     

  • Safe, compassionate spaces to share emotions and experiences.
     

  • Trusted medical and emotional resources.
     

  • Free mobile app for instant peer connection.

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For Healthcare Providers & Advocates

Partner with DSDN to enhance your Down syndrome diagnosis process. Access physician toolkits, educational resources, and direct referral options that connect families to real-time community support.

Partner With Us to Improve the Diagnosis Experience

DSDN partners with healthcare providers, hospitals, and advocacy organizations to ensure families receive an up-to-date, accurate, well-informed, and balanced diagnosis experience. We offer practical tools and real-time support to help providers guide families with confidence and empathy.

Resources for Professionals:

  • Guidance and talking points for discussing a Down syndrome diagnosis
     

  • Evidence-based resources for expectant and new parents
     

  • Pre-decision materials for patients exploring next steps
     

  • Referrals to local Down syndrome organizations
     

  • Connections to DSDN peer support programs
     

  • Parent panels and workshops sharing lived diagnosis experiences

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Rockin' Retreats

DSDN offers annual, in-person retreats so that Rockin' moms and dads time can recharge and connect.

Recharging Through Connection at the Rockin’ Retreats

Parenting a child with Down syndrome can be joyful, challenging, and deeply rewarding — but every parent deserves a break. DSDN’s annual Rockin’ Mom® and Rockin’ Dad™ Retreats give parents time to rest, connect, and recharge alongside others who truly understand.

Retreat Highlights Include: 

  • Weekend getaways designed exclusively for moms and dads raising a child with Down syndrome.

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  • A mix of relaxation, fun, and community-building — not a conference or training.

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  • Inspiring speakers, engaging activities, and meaningful conversations.

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  • Opportunities to share experiences and celebrate milestones with lifelong friends.

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  • A welcoming space where every parent can feel seen, supported, and renewed.

Why Families Choose DSDN

Thousands of families trust DSDN for connection, understanding, and hope. Our programs bring parents together, celebrate diversity, and empower every family after a Down syndrome diagnosis.

Parents hugging at a retreat, representing unity and understanding.

Empowering Families, Building Community

Since its founding, DSDN has supported thousands of families through connection, compassion, and advocacy. Whether you are a new parent or a seasoned advocate, you’ll find belonging here.

Community Highlights:

  • 25,000+ families supported globally since our founding
     

  • 24/7 connection through our secure app
     

  • Inclusive programs for diverse communities
     

  • Annual Rockin' Mom and Dad Retreats
     

  • Partnerships that improve diagnosis experiences

Community Voices

"The support and knowing that people care sustains us emotionally during

this challenging time."

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- a Rockin' mom

"I always felt alone in the journey but now I've gained more family connecting with these dads."

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-a Rockin' dad

"We really appreciate how thoughtful and supportive DSDN has been through this journey of ours."

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-a Rockin' family

"What a sweet blessing! Thank you for the care card! I am truly grateful for

the DSDN community."

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- a Rockin’ mom

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