Our Board of Directors:  

  • Melissa Shutwell, President

  • Jenny Di Benedetto, Vice President

  • Cathleen Small, Secretary

  • Jill Urich, Treasurer 

  • Heather Bradley

  • Becky Bausman

  • Kelli Caughman

  • Yadira Regla-Cuevas

  • Joe Scott

  • Bethany Van Delft

Our Medical Advisory Team:

  • Terri Couwenhoven, MS

  • Lauren Coyle, MD

  • Maureen Tart, MD

Our Operations Team:

Executive Director


Data Management





Local Partnerships


Medical Outreach


Retreat - Dad Event


Retreat - Mom Event


Rockin' Family Fund


Social Media



Black Families Down Syndrome Network

Down Syndrome & Cancer Coalition

  • Becky Carey

  • Megan Dodd

DSDN is the largest national organization supporting new and expectant parents with a Down syndrome diagnosis. The mission of the Down Syndrome Diagnosis Network is to connect, support, and provide accurate information for families with a Down syndrome diagnosis. Our vision is to ensure families have unbiased and factually accurate diagnosis experiences, every time, through which families quickly know they're not alone.


DSDN does not discriminate on the basis of race, gender, religion, sexual orientation or disability.

Read our privacy policy here: http://www.dsdiagnosisnetwork.org/#!privacy-policy/c1t2q

DSDN Contest Rules

how to support our mission...

The DSDN Team

The DSDN Team

Our Mission

2019 Annual Report

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