Our Board of Directors:  

  • Melissa Shutwell, President

  • Jenny Di Benedetto, Vice President

  • Becky Bausman, Secretary

  • Julia Kaufman, Treasurer 

  • Heather Bradley

  • Kelli Caughman

  • Ben Hughes

  • Taryn Lagonigro

  • Yadira Regla-Cuevas

  • Kathleen Seitz

Our Medical Advisory Team:

  • Terri Couwenhoven, MS

  • Lauren Coyle, MD

  • Maureen Tart, MD

Our Operations Team:

Executive Director

Director of Family Support

Black Families Down Syndrome Network



Local Partnerships


Medical Outreach

Online Support

Retreat - Dad Event


Retreat - Mom Event


Rockin' Family Fund


Social Media

DSDN is the largest national organization supporting new and expectant parents with a Down syndrome diagnosis. The mission of the Down Syndrome Diagnosis Network is to connect, support, and provide accurate information to parents - and the medical professionals who serve them - from the time of diagnosis through age 3, while fostering the opportunity for lifelong connections. Our vision is that every Down syndrome diagnosis will be delivered in an unbiased, factual, and supportive way every time, and that families can quickly find meaningful connections.

DSDN does not discriminate on the basis of race, gender, religion, sexual orientation or disability.

Read our privacy policy here: http://www.dsdiagnosisnetwork.org/#!privacy-policy/c1t2q

DSDN Contest Rules

how to support our mission...

The DSDN Team

The DSDN Team

Our Mission

FY2020 Annual Report

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