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Are you passionate about making a difference? Join DSDN as a volunteer! We have exciting roles available: ⭐️ Rockin' Family Fund Director ⭐️ Rockin’ Mom Retreat Team Roles ⭐️ DSDN App Group Moderator ⭐️ Rockin’ Dad Retreat Team Member 
 ⭐️ Major Gifts Fundraising Team Member
 ⭐️ App Help Desk Support ⭐️ Social Media Content Creator Your skills can truly impact our community! Click the link below to find the perfect opportunity for you. https://www.dsdiagnosisnetwork.org/volunteer-for-dsdn

Ready for some pre-holiday shopping?! Here is a chance to win some great goodies and support DSDN! Raffle tickets available now to have your chance to win incredible items like: apparel, jewelry, drinkware, ornaments, swag and more. You can also win a 2025 DSDN Retreat registration or a guaranteed spot in the 2025 NDSS Times Square video!!  Get your tickets now- sale ends November 21 and tickets for each item are limited. Winners will be drawn and announced by November 23 and items shipped by December 1.  SHOP THE RAFFLE HERE: https://form.jotform.com/DSDN/2024-dsdn-raffle

Does your child with Down syndrome face challenges with GI or feeding issues? You are not alone. We understand how difficult and overwhelming these struggles can be. That’s why we’re here—to offer support, guidance, and a community of families who are walking this path with you. Our groups are a safe, understanding space where you can connect, share your experiences, and find the resources you need. GI Concerns: Navigating gastrointestinal challenges can be tough, but you're not in this by yourself. Our group offers helpful tips, resources, and support from others who truly understand what you're going through. Feeding Support: Does your child have unique feeding needs, or if you’re facing challenges, this is a place to talk, share, and work together to overcome them while celebrating the wins along the way. Tube Feeding: Whether you’re just beginning your tube feeding journey or have been managing it for a while, this group is here to offer advice, comfort, and a chance to connect with others who can relate. We know how much this journey means to you and your family. You don’t have to go through it alone—we’re here to support you every step of the way. To find all three groups, simply click on Groups in the navigation bar, then select Medical Condition Groups.

It's fundraising launch day!! 🎉 We have a new opportunity this year to help those of you that aren’t able to travel for our Rockin‘ Mom or Dad retreats. Check out the new staycation option! ⬇️ Go HERE to fill out your fundraiser agreement to get started! A few extras for this year: ️ ⭐️ Raffle! We are hosting a DSDN raffle ahead of this holiday season! Submit an item to contribute and when it is won, you ship the item and then will get the raffle ticket monies added to your fundraising account. How it works: We will sell up to 250 tickets at $5 for each item. For example, if you offer an item and it sells 100 tickets- that is $500 into your account! Submissions due by November 8 so we can take advantage of the holiday sales season. Raffle sales end November 21. SUBMIT HERE ⭐️ Shop & Support website! We want your fundraisers that support DSDN to reach as many people as possible. To help, we have created a space on our website to post about shops and sales and events that benefit DSDN. SUBMIT HERE A few things to note: ⭐️ In order to earn prizes this year you must be in the DSDN app. If you need help getting set up, please let us know. https://www.dsdiagnosisnetwork.org/dsdn-app ⭐️ Once you are signed up to fundraise, create an NFG page and join the app- you are all set to win prizes! We already have $200,000 pledged to raise for DSDN this year! 🎉Help us get to our goal and double that! Thank you for supporting new families in our Down syndrome community! We are making such a huge difference for them today and in the future. ❤️

How do you like to best reset and recharge? Tell us about it here ➡️ https://form.jotform.com/DSDN/reset--recharge and have a chance to win a $25 Amazon gift card . Survey closes November 1, 2024.

Have you heard about DSDN's virtual Costume Contest? Not only will you get to show off your Rockin' Family, but you could also WIN a gift card! We can't wait to see all of the pictures within our community. It’s a great way to connect and maybe even inspire others. How to participate: Create your post, in your birth group, with the subject: Costume Contest. Feel free to submit as many photos as you’d like, but just remember, only one entry per person will count. The contest runs until October 31st. We’ll randomly select the winner on November 2nd! Don’t miss out! Post a picture and join the fun.

We’ve been hard at work making the DSDN app more user-friendly! Just a reminder on the recent updates: You can reply directly to comments.  All comments are in sequential order to help with readability.  You only get notified about comments that directly relate to your posts or tags. We've resolved the random logoff issue for smoother usage. You now see more text in post previews, so fewer posts will require you to click "read more."  ️ ⭐️ What’s Coming Next? We’re working on user profiles! This will include options for sharing contact information to make it easier for users to connect through direct communication systems like WhatsApp and Facebook Messenger.   In July, we asked for your feedback on which improvements matter most. While priorities vary from person to person, some common areas rise to the top: Newsfeed functionality Direct messaging More reactions, similar to Facebook Ability to comment with just a GIF or photo More personalized notifications Moderators having the ability to push notifications for posts needing urgent support These priorities help shape our plans ahead. And, we aren’t done - we are ready for you to weigh in again! We’ve added new ideas that have been requested by the community, removed the ones we’ve implemented, and kept outstanding requests on the list. Let us know what you’d like to see next! https://form.jotform.com/DSDN/dsdn-app-priorities-sept24 Do you have a new suggestion or issue we haven’t addressed yet? Submit it here: https://form.jotform.com/DSDN/dsdn-app-feedback-form Thank you for weighing in and your continued support of DSDN and the app!

Exciting news! Our app has just received a major update that you won't want to miss. First off, you can now reply directly to comments! This highly requested feature is finally here, and we can't wait for you to try it out. But that's not all – we've also reorganized the order of comments to make sure they appear in a sequential order, and we've revamped our notifications. You will no longer be notified when someone comments on a post that you also commented on, cutting down on the number of notifications to those that are most relevant to you. You will receive notifications for comments on your posts, tags in a post, or replies to your comments. We believe that these changes will enhance your app experience and make it even more enjoyable. To take advantage of these new features, be sure you are using version 1.0.12 of the app. Thank you for your continued support, and we hope you enjoy using this new feature as much as we enjoyed creating it for you!

DSDN has some awesome Back to School Resources, including a link to an editable One Page Student Profile sheet. Check it out here: https://www.dsdiagnosisnetwork.org/for-parents-of-children-with-down-syndrome/back-to-school-resources

We welcome your ideas for enhancing the app! Two major updates are coming soon: 1. Nesting of comments so that you can reply directly to another person 2. User profiles We already have a list of great future improvements to make. Although we wish we could do them all right away, we need to prioritize and introduce enhancements over time. That’s where YOU come in—we need you to weigh in on the improvements that are most important to you! Weigh in here: https://form.jotform.com/DSDN/dsdn-app-suggestions Do you have an app issue or suggestion that isn’t already on the list? You can submit that here: https://form.jotform.com/DSDN/dsdn-app-feedback-form Not yet in the app? Get connected here: https://www.dsdiagnosisnetwork.org/dsdn-app

DSDN is proud to offer two $500 adoption grants to families who adopted a Rockin' child this year. If you're a US citizen who adopted a child with Down syndrome of any age between August 2, 2023, and August 1, 2024, we invite you to apply today! https://www.dsdiagnosisnetwork.org/rockin-family-fund ❗️Applications close July 31, 2024 at 11:59 PM Central Time. Randomly selected winners will be contacted August 2. These grants are made possible by our DSDN Rockin' Family Fund. To learn more about how RFF benefits our families, check out the website above.

Navigating a diagnosis or potential diagnosis can be confusing and completely overwhelming. Genetic counseling exists to help you get the right information, resources, and connections so you can move forward. Join us for this special webinar about genetic counseling with Katie Stoll, MS, CGC, Executive Director of the Genetic Support Foundation, and Dr. Stephanie Meredith, Medical Outreach / Lettercase Program Director with the University of Kentucky. We'll cover: - what a genetic counselor does - the difference between a genetic counselor and a geneticist - what insurance covers related to genetic counseling - what a good experience with a genetic counselor should be like - what you can do to empower your clinician so the next patient they see has the best diagnosis experience possible Genetic Counseling 101 Webinar