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Support for Every Family.
Connection for Every Journey.

Find compassionate Down syndrome support through DSDN. Get new diagnosis help, join parent support groups, and connect with families like yours — including Black, Hispanic, Indigenous, and Asian/South Asian communities.

A smiling family holding their baby with Down syndrome, symbolizing hope and connection.

You Don’t Have to Face a Down Syndrome Diagnosis Alone

At the Down Syndrome Diagnosis Network (DSDN), we connect parents and families across the world who are navigating a new or recent Down syndrome diagnosis. From the first day to every milestone, we’re here with support, understanding, and community.

Group Members

22,832

Group

Members

Pregnancy Groups

43

Pregnancy &

Birth Groups

Medical Condition Groups

28

Medical
Condition Groups

Family Identity Groups

31

Parent & Family
Identity Groups

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Parent Support Groups

Parenting a child with Down syndrome is a journey best shared. DSDN’s parent support groups connect moms, dads, and families with others who truly understand — offering guidance, friendship, and hope through every stage.

Find Your People — Parent Support Groups for Every Journey

Parenting a child with Down syndrome is unique — but it’s never something you have to do alone. DSDN offers online and local communities where parents find friendship, understanding, and encouragement.

Groups for Every Family

  • Rockin’ Moms & Dads – year-based groups for every stage of parenting.
     

  • Cultural & language-specific groups for Black, Hispanic, Indigenous, and Asian/South Asian families.
     

  • Specialized groups for single parents, adoptive families, and grandparents.
     

  • Events & retreats that build lifelong bonds and renewal.

New Diagnosis Help

A Down syndrome diagnosis can feel overwhelming, but help is here. Our new diagnosis resources guide parents from uncertainty to connection — with accurate information, real stories, and people who truly get it.

A parent holding their newborn, surrounded by gentle pastel tones symbolizing calm and support.

Immediate Support After a Down Syndrome Diagnosis

If you’ve just received a Down syndrome diagnosis, you are not alone. Our New Diagnosis Support Program helps parents process, learn, and connect with others walking the same journey.

New Parent Support Consists of

  • Private, moderated groups by your baby’s birth year.
     

  • Safe, compassionate spaces to share emotions and experiences.
     

  • Trusted medical and emotional resources.
     

  • Free mobile app for instant peer connection.

For Healthcare Providers & Advocates

Partner with DSDN to enhance your Down syndrome diagnosis process. Access physician toolkits, educational resources, and direct referral options that connect families to real-time community support.

Medical experts meeting in a supportive environment, representing collaboration and care.

Partner With Us to Improve the Diagnosis Experience

DSDN partners with healthcare providers, hospitals, and advocacy organizations to ensure families receive an up-to-date, accurate, well-informed, and balanced diagnosis experience. We offer practical tools and real-time support to help providers guide families with confidence and empathy.

Resources for Professionals

  • Guidance and talking points for discussing a Down syndrome diagnosis
     

  • Evidence-based resources for expectant and new parents
     

  • Pre-decision materials for patients exploring next steps
     

  • Referrals to local Down syndrome organizations
     

  • Connections to DSDN peer support programs
     

  • Parent panels and workshops sharing lived diagnosis experiences

Why Families Choose DSDN

Thousands of families trust DSDN for connection, understanding, and hope. Our programs bring parents together, celebrate diversity, and empower every family after a Down syndrome diagnosis.

Parents hugging at a retreat, representing unity and understanding.

Empowering Families, Building Community

Since its founding, DSDN has supported thousands of families through connection, compassion, and advocacy. Whether you are a new parent or a seasoned advocate, you’ll find belonging here.

Community Highlights

  • 25,000+ families supported globally
     

  • 24/7 connection through our secure app
     

  • Inclusive programs for diverse communities
     

  • Annual Rockin' Mom and Dad Retreats
     

  • Partnerships that improve diagnosis experiences

Community Voices

"The support and knowing that people care sustains us emotionally during

this challenging time."

​

- a Rockin' mom

"The support and knowing that people care sustains us emotionally during this challenging time."

​

-a Rockin' mom

"We really appreciate how thoughtful and supportive DSDN has been through this journey of ours."

​

-a Rockin' family

"What a sweet blessing! Thank you for the care card! I am truly grateful for

the DSDN community."

​

- a Rockin’ mom

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