Resources For DSDN Families

We are so glad that you are a part of our growing network of families! Our first small, private Facebook group began in February of 2013 with 150 moms from around the world with children rockin' the extra 21st chromosome.  DSDN officially launched as nonprofit organization in 2014. Currently, we serve over 13,000 families with children with Down syndrome in over 20 small, private birth club groups and large closed birth club groups.  Find your birth club group here .

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THINGS TO KNOW:

• Read our Group Membership Guidelines and Expectations here to know what to expect as a member of our DSDN network

• Check out the Rockin' Family Fund which fuels opportunities for our DSDN network of families

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JOIN A BIRTH CLUB:

• Find connections with other parents who have children around the same age

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ADDITIONAL DSDN SUPPORT GROUPS:

These are groups open to families within DSDN network

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1. All star group - for moms in a DSDN birth club

2. Adoption (for those who have already completed adoption)

3. Alopecia

4. Asian Families 

5. Behavior Support (this is not a DSDN-run group)

6. Black Families

7. Bloggers

8. Breastfeeding/Pumping Support 

9. Cancer and Ds

10. Canadian Parents

11. Clubfoot

12. Colors of Down syndrome (this is not a DSDN-run group)

13. CPAP/o2

14. Cranio

15. Crunchy/natural parenting

16. Dads group

17. DSDN Africa

18. DSDN SE Asia

19. Dual Diagnosis- Autism and Ds

20. Extended hospital stays and Ds

21. Feeding Support

22. Fit-minded Moms

23. GI concerns

24. Grandparents Group (this is not a DSDN-run group)

25. Hearing Loss

26. Heart group 

27. Homeschooling Support

28. Hydrops and Pregnancy 

29. IEP/IFSP support

30. Inclusion within the classroom (this is not a DSDN-run group)

31. Infantile Spasms

32. Large Families

33. Loss Group- Infant/Child

34. Loss Group- Pregnancy/Stillbirth

35. Medically Complex

36. Military Family Connections

37. More than one child with Ds

38. Mosaic Down syndrome

39. NICU support

40. Not Yet Academic Skills

41. Not Yet Potty Trained

42. Not Yet Speaking

43. Not Yet Walking

44. Only Child Parenting

45. Over 40 at Diagnosis Moms

46. Parenting more than one child with a diagnosis 

47. Parenting as an LGBTQIA parent

48. Pregnancy after a child with Down syndrome

49. Pregnancy Group

50. Pulmonary Hypertension

51. Single parenting-mom

52. Single parenting-dads

53. Shop and Support DSDN

54. Sleep Support

55. Spanish speaking

56. Stay At Home Dads Group

57. Stay At Home Mom Group

58. Thyroid

59. TMD

60. Tube/feeding

61. Trach Group

62. Translocation Families

63. Twins

64. Under 40 Moms

65. Vision Group

66. Working Moms

FIND LOCAL SUPPORT

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• Contact our DSDN Local Partnership Team

• Global Down Syndrome Foundation

• NDSS 

NATIONAL SUPPORTS

• Down Syndrome Diagnosis Network

• Global Down Syndrome Foundation

• International Mosaic Down Syndrome Association

• National Down Syndrome Adoption Network

• National Down Syndrome Congress

• National Down Syndrome Society

HEALTH LINKS:

• American Academy of Pediatrics Healthcare Guidelines

• Current Growth Chart for Children with Down Syndrome

• Find a Down Syndrome Specialty Clinic near you

WEBSITES:

• Unexpected: Stories of a Down Syndrome Diagnosis

  • Over 75 diagnosis stories free to download and read 

• Babycenter Down Syndrome Support Page

  • Anonymous online forum​

• Babycenter Down Syndrome Pregnancy Page

  • Anonymous online forum for expectant parents

• Down syndrome Blogs

  • A comprehensive list of blogs​

• Down Syndrome Pregnancy

  • Resources for those with a prenatal diagnosis​

• Find a Buddy Walk Near You

• Welcome to Holland essay

READING:

• Unexpected: Stories of a Down syndrome Diagnosis

• The Parent’s Guide to Down syndrome