Resources For DSDN Families

We are so glad that you are a part of our growing network of families! Our first small, private Facebook group began in February of 2013 with 150 moms from around the world with children rockin' the extra 21st chromosome.  DSDN officially launched as nonprofit organization in 2014. Currently, we serve over 13,000 families with children with Down syndrome in over 20 small, private birth club groups and large closed birth club groups.  Find your birth club group here .

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THINGS TO KNOW:

• Read our Group Membership Guidelines and Expectations here to know what to expect as a member of our DSDN network

• Check out the Rockin' Family Fund which fuels opportunities for our DSDN network of families

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JOIN A BIRTH CLUB:

• Find connections with other parents who have children around the same age

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ADDITIONAL DSDN SUPPORT GROUPS:

These are groups open to families within DSDN network

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1. All star group - for moms in a DSDN birth club

2. Adoption (for those who have already completed adoption)

3. Alopecia

4. Behavior Support (this is not a DSDN-run group)

5. Black Families

6. Bloggers

7. Breastfeeding/Pumping Support 

8. Cancer and Ds

9. Canadian Parents

10. Clubfoot

11. Colors of Down syndrome (this is not a DSDN-run group)

12. CPAP/o2

13. Cranio

14. Crunchy/natural parenting

15. Dads group

16. Dual Diagnosis- Autism and Ds

17. Extended hospital stays and Ds

18. Feeding Support

19. Fit-minded Moms

20. GI concerns

21. Grandparents Group (this is not a DSDN-run group)

22. Hearing Loss

23. Heart group 

24. Homeschooling Support

25. Hydrops and Pregnancy 

26. IEP/IFSP support

27. Inclusion within the classroom (this is not a DSDN-run group)

28. Infantile Spasms

29. Loss Group- Infant/Child

30. Loss Group- Pregnancy/Stillbirth

31. Medically Complex

32. Military Family Connections

33. More than one child with Ds

34. Mosaic Down syndrome

35. NICU support

36. Only Child Parenting

37. Over 40 at Diagnosis Moms

38. Parenting more than one child with a diagnosis 

39. Parenting as an LGBTQIA parent

40. Pregnancy after a child with Down syndrome

41. Pregnancy Group

42. Pulmonary Hypertension

43. Single parenting-mom

44. Single parenting-dads

45. Shop and Support DSDN

46. Sleep Support

47. Spanish speaking

48. Stay At Home Dads Group

49. Stay At Home Mom Group

50. Thyroid

51. TMD

52. Tube/feeding

53. Trach Group

54. Translocation Families

55. Twins

56. Under 40 Moms

57. Vision Group

58. Working Moms

FIND LOCAL SUPPORT

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• Contact our DSDN Local Partnership Team

• Global Down Syndrome Foundation

• NDSS 

NATIONAL SUPPORTS

• Down Syndrome Diagnosis Network

• Global Down Syndrome Foundation

• International Mosaic Down Syndrome Association

• National Down Syndrome Adoption Network

• National Down Syndrome Congress

• National Down Syndrome Society

HEALTH LINKS:

• American Academy of Pediatrics Healthcare Guidelines

• Current Growth Chart for Children with Down Syndrome

• Find a Down Syndrome Specialty Clinic near you

WEBSITES:

• Unexpected: Stories of a Down Syndrome Diagnosis

  • Over 75 diagnosis stories free to download and read 

• Babycenter Down Syndrome Support Page

  • Anonymous online forum​

• Babycenter Down Syndrome Pregnancy Page

  • Anonymous online forum for expectant parents

• Down syndrome Blogs

  • A comprehensive list of blogs​

• Down Syndrome Pregnancy

  • Resources for those with a prenatal diagnosis​

• Find a Buddy Walk Near You

• Welcome to Holland essay

READING:

• Unexpected: Stories of a Down syndrome Diagnosis

• The Parent’s Guide to Down syndrome