Resources For DSDN Families

We are so glad that you are a part of our growing network of families! Our first small, private Facebook group began in February of 2013 with 150 moms from around the world with children rockin' the extra 21st chromosome.  DSDN officially launched as nonprofit organization in 2014. Currently, we serve over 13,000 families with children with Down syndrome in over 20 small, private birth club groups and large closed birth club groups.  Find your birth club group here .

​

THINGS TO KNOW:

• Read our Group Membership Guidelines and Expectations here to know what to expect as a member of our DSDN network

• Check out the Rockin' Family Fund which fuels opportunities for our DSDN network of families

​

​

JOIN A BIRTH CLUB:

• Find connections with other parents who have children around the same age

​

ADDITIONAL DSDN SUPPORT GROUPS:

These are groups open to families within DSDN network

​

1. All star group - for moms in a DSDN birth club

2. Adoption (for those who have already completed adoption)

3. Alopecia

4. Asian Families 

5. Behavior Support (this is not a DSDN-run group)

6. Black Families

7. Bloggers

8. Breastfeeding/Pumping Support 

9. Cancer and Ds

10. Canadian Parents

11. Clubfoot

12. Colors of Down syndrome (this is not a DSDN-run group)

13. CPAP/o2

14. Cranio

15. Crunchy/natural parenting

16. Dads group

17. Dual Diagnosis- Autism and Ds

18. Extended hospital stays and Ds

19. Feeding Support

20. Fit-minded Moms

21. GI concerns

22. Grandparents Group (this is not a DSDN-run group)

23. Hearing Loss

24. Heart group 

25. Homeschooling Support

26. Hydrops and Pregnancy 

27. IEP/IFSP support

28. Inclusion within the classroom (this is not a DSDN-run group)

29. Infantile Spasms

30. Large Families

31. Loss Group- Infant/Child

32. Loss Group- Pregnancy/Stillbirth

33. Medically Complex

34. Military Family Connections

35. More than one child with Ds

36. Mosaic Down syndrome

37. NICU support

38. Only Child Parenting

39. Over 40 at Diagnosis Moms

40. Parenting more than one child with a diagnosis 

41. Parenting as an LGBTQIA parent

42. Pregnancy after a child with Down syndrome

43. Pregnancy Group

44. Pulmonary Hypertension

45. Single parenting-mom

46. Single parenting-dads

47. Shop and Support DSDN

48. Sleep Support

49. Spanish speaking

50. Stay At Home Dads Group

51. Stay At Home Mom Group

52. Thyroid

53. TMD

54. Tube/feeding

55. Trach Group

56. Translocation Families

57. Twins

58. Under 40 Moms

59. Vision Group

60. Working Moms

FIND LOCAL SUPPORT

​​

• Contact our DSDN Local Partnership Team

• Global Down Syndrome Foundation

• NDSS 

NATIONAL SUPPORTS

• Down Syndrome Diagnosis Network

• Global Down Syndrome Foundation

• International Mosaic Down Syndrome Association

• National Down Syndrome Adoption Network

• National Down Syndrome Congress

• National Down Syndrome Society

HEALTH LINKS:

• American Academy of Pediatrics Healthcare Guidelines

• Current Growth Chart for Children with Down Syndrome

• Find a Down Syndrome Specialty Clinic near you

WEBSITES:

• Unexpected: Stories of a Down Syndrome Diagnosis

  • Over 75 diagnosis stories free to download and read 

• Babycenter Down Syndrome Support Page

  • Anonymous online forum​

• Babycenter Down Syndrome Pregnancy Page

  • Anonymous online forum for expectant parents

• Down syndrome Blogs

  • A comprehensive list of blogs​

• Down Syndrome Pregnancy

  • Resources for those with a prenatal diagnosis​

• Find a Buddy Walk Near You

• Welcome to Holland essay

READING:

• Unexpected: Stories of a Down syndrome Diagnosis

• The Parent’s Guide to Down syndrome