Resources For DSDN Families

We are so glad that you are a part of our growing network of families! Our first small, private Facebook group began in February of 2012 with 150 moms from around the world with children rockin' the extra 21st chromosome.  DSDN officially launched as nonprofit organization in 2014. Currently, we serve over 9000 families with children with Down syndrome in over 20 small, private birth club groups and large closed birth club groups.  Find your birth club group here .

THINGS TO KNOW:

JOIN A BIRTH CLUB:

ADDITIONAL DSDN SUPPORT GROUPS:

These are groups open to families within DSDN network

  1. All star group -

  2. Adoption (for those who have already completed adoption)

  3. Alopecia

  4. Behavior Support (this is not a DSDN-run group)

  5. Black Families

  6. Bloggers

  7. Breastfeeding/Pumping Support 

  8. Cancer and Ds

  9. Canadian Moms

  10. Clubfoot

  11. Colors of Down syndrome (this is not a DSDN-run group)

  12. CPAP/o2

  13. Cranio

  14. Crunchy/natural parenting

  15. Dads group

  16. Dual Diagnosis- Autism and Ds

  17. Extended hospital stays and Ds

  18. Feeding Support

  19. Fit-minded Moms

  20. GI concerns

  21. Grandparents Group (this is not a DSDN-run group)

  22. Hearing Loss

  23. Heart group 

  24. Hydrops and Pregnancy 

  25. IEP/IFSP support

  26. Inclusion within the classroom (this is not a DSDN-run group)

  27. Infantile Spasms

  28. Loss Group

  29. Medically Complex

  30. More than one child with Ds

  31. Mosaic Down syndrome

  32. NICU support

  33. Only Child Parenting

  34. Over 40 at Diagnosis Moms

  35. Parenting more than one child with a diagnosis 

  36. Parenting as an LGBTQIA parent

  37. Pregnancy after a child with Down syndrome

  38. Pregnancy Group

  39. Pulmonary Hypertension

  40. Single parenting-mom

  41. Single parenting-dads

  42. Shop and Support DSDN

  43. Sleep Support

  44. Spanish speaking

  45. Stay At Home Mom Group

  46. Thyroid

  47. Tube/feeding

  48. Trach Group

  49. Translocation Families

  50. Twins

  51. Under 40 Moms

  52. Vision Group

  53. Working Moms

 

FIND LOCAL SUPPORT

 

NATIONAL SUPPORTS

 

HEALTH LINKS:

 

WEBSITES:

 

 

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