Resources For DSDN Families

We are so glad that you are a part of our growing network of families! Our first small, private Facebook group began in February of 2013 with 150 moms from around the world with children rockin' the extra 21st chromosome.  DSDN officially launched as nonprofit organization in 2014. Currently, we serve over 13,000 families with children with Down syndrome in over 20 small, private birth club groups and large closed birth club groups.  Find your birth club group here .

THINGS TO KNOW:

JOIN A BIRTH CLUB:

ADDITIONAL DSDN SUPPORT GROUPS:

These are groups open to families within DSDN network

  1. All star group - for moms in a DSDN birth club

  2. Adoption (for those who have already completed adoption)

  3. Alopecia

  4. Asian Families 

  5. Behavior Support (this is not a DSDN-run group)

  6. Black Families

  7. Bloggers

  8. Breastfeeding/Pumping Support 

  9. Cancer and Ds

  10. Canadian Parents

  11. Clubfoot

  12. Colors of Down syndrome (this is not a DSDN-run group)

  13. CPAP/o2

  14. Cranio

  15. Crunchy/natural parenting

  16. Dads group

  17. DSDN Africa

  18. DSDN SE Asia

  19. Dual Diagnosis- Autism and Ds

  20. Extended hospital stays and Ds

  21. Feeding Support

  22. Fit-minded Moms

  23. GI concerns

  24. Grandparents Group (this is not a DSDN-run group)

  25. Hearing Loss

  26. Heart group 

  27. Homeschooling Support

  28. Hydrops and Pregnancy 

  29. IEP/IFSP support

  30. Inclusion within the classroom (this is not a DSDN-run group)

  31. Infantile Spasms

  32. Large Families

  33. Loss Group- Infant/Child

  34. Loss Group- Pregnancy/Stillbirth

  35. Medically Complex

  36. Military Family Connections

  37. More than one child with Ds

  38. Mosaic Down syndrome

  39. NICU support

  40. Not Yet Academic Skills

  41. Not Yet Potty Trained

  42. Not Yet Speaking

  43. Not Yet Walking

  44. Only Child Parenting

  45. Over 40 at Diagnosis Moms

  46. Parenting more than one child with a diagnosis 

  47. Parenting as an LGBTQIA parent

  48. Pregnancy after a child with Down syndrome

  49. Pregnancy Group

  50. Pulmonary Hypertension

  51. Single parenting-mom

  52. Single parenting-dads

  53. Shop and Support DSDN

  54. Sleep Support

  55. Spanish speaking

  56. Stay At Home Dads Group

  57. Stay At Home Mom Group

  58. Thyroid

  59. TMD

  60. Tube/feeding

  61. Trach Group

  62. Translocation Families

  63. Twins

  64. Under 40 Moms

  65. Vision Group

  66. Working Moms

 

FIND LOCAL SUPPORT

 

NATIONAL SUPPORTS

 

HEALTH LINKS:

 

WEBSITES:

 

 

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