Resources For DSDN Families

We are so glad that you are a part of our growing network of families! Our first small, private Facebook group began in February of 2013 with 150 moms from around the world with children rockin' the extra 21st chromosome.  DSDN officially launched as nonprofit organization in 2014. Currently, we serve over 13,000 families with children with Down syndrome in over 20 small, private birth club groups and large closed birth club groups.  Find your birth club group here .

THINGS TO KNOW:

JOIN A BIRTH CLUB:

ADDITIONAL DSDN SUPPORT GROUPS:

These are groups open to families within DSDN network

  1. All star group - for moms in a DSDN birth club

  2. Adoption (for those who have already completed adoption)

  3. Alopecia

  4. Asian Families 

  5. Behavior Support (this is not a DSDN-run group)

  6. Black Families

  7. Bloggers

  8. Breastfeeding/Pumping Support 

  9. Cancer and Ds

  10. Canadian Parents

  11. Clubfoot

  12. Colors of Down syndrome (this is not a DSDN-run group)

  13. CPAP/o2

  14. Cranio

  15. Crunchy/natural parenting

  16. Dads group

  17. Dual Diagnosis- Autism and Ds

  18. Extended hospital stays and Ds

  19. Feeding Support

  20. Fit-minded Moms

  21. GI concerns

  22. Grandparents Group (this is not a DSDN-run group)

  23. Hearing Loss

  24. Heart group 

  25. Homeschooling Support

  26. Hydrops and Pregnancy 

  27. IEP/IFSP support

  28. Inclusion within the classroom (this is not a DSDN-run group)

  29. Infantile Spasms

  30. Large Families

  31. Loss Group- Infant/Child

  32. Loss Group- Pregnancy/Stillbirth

  33. Medically Complex

  34. Military Family Connections

  35. More than one child with Ds

  36. Mosaic Down syndrome

  37. NICU support

  38. Only Child Parenting

  39. Over 40 at Diagnosis Moms

  40. Parenting more than one child with a diagnosis 

  41. Parenting as an LGBTQIA parent

  42. Pregnancy after a child with Down syndrome

  43. Pregnancy Group

  44. Pulmonary Hypertension

  45. Single parenting-mom

  46. Single parenting-dads

  47. Shop and Support DSDN

  48. Sleep Support

  49. Spanish speaking

  50. Stay At Home Dads Group

  51. Stay At Home Mom Group

  52. Thyroid

  53. TMD

  54. Tube/feeding

  55. Trach Group

  56. Translocation Families

  57. Twins

  58. Under 40 Moms

  59. Vision Group

  60. Working Moms

 

FIND LOCAL SUPPORT

 

NATIONAL SUPPORTS

 

HEALTH LINKS:

 

WEBSITES:

 

 

READING: