Resources For DSDN Families

We are so glad that you are a part of our growing network of families! Our first small, private Facebook group began in February of 2012 with 150 moms from around the world with children rockin' the extra 21st chromosome.  DSDN officially launched as nonprofit organization in 2014. Currently, we serve over 9000 families with children with Down syndrome in over 20 small, private birth club groups and large closed birth club groups.  Find your birth club group here .

​

THINGS TO KNOW:

• Read our Group Membership Guidelines and Expectations here to know what to expect as a member of our DSDN network

• Check out the Rockin' Family Fund which fuels opportunities for our DSDN network of families

​

​

JOIN A BIRTH CLUB:

• Find connections with other parents who have children around the same age

​

ADDITIONAL DSDN SUPPORT GROUPS:

These are groups open to families within DSDN network

​

1. All star group -

2. Adoption (for those who have already completed adoption)

3. Alopecia

4. Behavior Support (this is not a DSDN-run group)

5. Black Families

6. Bloggers

7. Breastfeeding/Pumping Support 

8. Cancer and Ds

9. Canadian Parents

10. Clubfoot

11. Colors of Down syndrome (this is not a DSDN-run group)

12. CPAP/o2

13. Cranio

14. Crunchy/natural parenting

15. Dads group

16. Dual Diagnosis- Autism and Ds

17. Extended hospital stays and Ds

18. Feeding Support

19. Fit-minded Moms

20. GI concerns

21. Grandparents Group (this is not a DSDN-run group)

22. Hearing Loss

23. Heart group 

24. Homeschooling Support

25. Hydrops and Pregnancy 

26. IEP/IFSP support

27. Inclusion within the classroom (this is not a DSDN-run group)

28. Infantile Spasms

29. Loss Group- Infant/Child

30. Loss Group- Pregnancy/Stillbirth

31. Medically Complex

32. More than one child with Ds

33. Mosaic Down syndrome

34. NICU support

35. Only Child Parenting

36. Over 40 at Diagnosis Moms

37. Parenting more than one child with a diagnosis 

38. Parenting as an LGBTQIA parent

39. Pregnancy after a child with Down syndrome

40. Pregnancy Group

41. Pulmonary Hypertension

42. Single parenting-mom

43. Single parenting-dads

44. Shop and Support DSDN

45. Sleep Support

46. Spanish speaking

47. Stay At Home Dads Group

48. Stay At Home Mom Group

49. Thyroid

50. Tube/feeding

51. Trach Group

52. Translocation Families

53. Twins

54. Under 40 Moms

55. Vision Group

56. Working Moms

FIND LOCAL SUPPORT

​​

• Global Down Syndrome Foundation

• NDSS 

NATIONAL SUPPORTS

• Down Syndrome Diagnosis Network

• Global Down Syndrome Foundation

• International Down Syndrome Coalition 

• International Mosaic Down Syndrome Association

• National Down Syndrome Congress

• National Down Syndrome Society

HEALTH LINKS:

• American Academy of Pediatrics Healthcare Guidelines

• Current Growth Chart for Children with Down Syndrome

• Find a Down Syndrome Specialty Clinic near you

WEBSITES:

• Unexpected: Stories of a Down Syndrome Diagnosis

  • Over 75 diagnosis stories free to download and read 

• Babycenter Down Syndrome Support Page

  • Anonymous online forum​

• Babycenter Down Syndrome Pregnancy Page

  • Anonymous online forum for expectant parents

• Down syndrome Blogs

  • A comprehensive list of blogs​

• Down Syndrome Pregnancy

  • Resources for those with a prenatal diagnosis​

• Find a Buddy Walk Near You

• Welcome to Holland essay

READING:

• Unexpected: Stories of a Down syndrome Diagnosis

• The Parent’s Guide to Down syndrome