Resources For DSDN Families

We are so glad that you are a part of our growing network of families! Our first small, private Facebook group began in February of 2013 with 150 moms from around the world with children rockin' the extra 21st chromosome.  DSDN officially launched as nonprofit organization in 2014. Currently, we serve over 13,000 families with children with Down syndrome in over 20 small, private birth club groups and large closed birth club groups.  Find your birth club group here .

THINGS TO KNOW:

JOIN A BIRTH CLUB:

ADDITIONAL DSDN SUPPORT GROUPS:

These are groups open to families within DSDN network

  1. All star group - for moms in a DSDN birth club

  2. Adoption (for those who have already completed adoption)

  3. Alopecia

  4. Behavior Support (this is not a DSDN-run group)

  5. Black Families

  6. Bloggers

  7. Breastfeeding/Pumping Support 

  8. Cancer and Ds

  9. Canadian Parents

  10. Clubfoot

  11. Colors of Down syndrome (this is not a DSDN-run group)

  12. CPAP/o2

  13. Cranio

  14. Crunchy/natural parenting

  15. Dads group

  16. Dual Diagnosis- Autism and Ds

  17. Extended hospital stays and Ds

  18. Feeding Support

  19. Fit-minded Moms

  20. GI concerns

  21. Grandparents Group (this is not a DSDN-run group)

  22. Hearing Loss

  23. Heart group 

  24. Homeschooling Support

  25. Hydrops and Pregnancy 

  26. IEP/IFSP support

  27. Inclusion within the classroom (this is not a DSDN-run group)

  28. Infantile Spasms

  29. Loss Group- Infant/Child

  30. Loss Group- Pregnancy/Stillbirth

  31. Medically Complex

  32. Military Family Connections

  33. More than one child with Ds

  34. Mosaic Down syndrome

  35. NICU support

  36. Only Child Parenting

  37. Over 40 at Diagnosis Moms

  38. Parenting more than one child with a diagnosis 

  39. Parenting as an LGBTQIA parent

  40. Pregnancy after a child with Down syndrome

  41. Pregnancy Group

  42. Pulmonary Hypertension

  43. Single parenting-mom

  44. Single parenting-dads

  45. Shop and Support DSDN

  46. Sleep Support

  47. Spanish speaking

  48. Stay At Home Dads Group

  49. Stay At Home Mom Group

  50. Thyroid

  51. TMD

  52. Tube/feeding

  53. Trach Group

  54. Translocation Families

  55. Twins

  56. Under 40 Moms

  57. Vision Group

  58. Working Moms

 

FIND LOCAL SUPPORT

 

NATIONAL SUPPORTS

 

HEALTH LINKS:

 

WEBSITES:

 

 

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