Resources For DSDN Families

We are so glad that you are a part of our growing network of families! Our first small, private Facebook group began in February of 2012 with 150 moms from around the world with children rockin' the extra 21st chromosome.  DSDN officially launched as nonprofit organization in 2014. Currently, we serve over 9000 families with children with Down syndrome in over 20 small, private birth club groups and large closed birth club groups.  Find your birth club group here .

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THINGS TO KNOW:

• Read our Group Membership Guidelines and Expectations here to know what to expect as a member of our DSDN network

• Check out the Rockin' Family Fund which fuels opportunities for our DSDN network of families

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JOIN A BIRTH CLUB:

• Find connections with other parents who have children around the same age

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ADDITIONAL DSDN SUPPORT GROUPS:

These are groups open to families within DSDN network

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1. All star group -

2. Adoption (for those who have already completed adoption)

3. Alopecia

4. Behavior Support (this is not a DSDN-run group)

5. Black Families

6. Bloggers

7. Breastfeeding/Pumping Support 

8. Cancer and Ds

9. Canadian Moms

10. Clubfoot

11. Colors of Down syndrome (this is not a DSDN-run group)

12. CPAP/o2

13. Cranio

14. Crunchy/natural parenting

15. Dads group

16. Dual Diagnosis- Autism and Ds

17. Extended hospital stays and Ds

18. Feeding Support

19. Fit-minded Moms

20. GI concerns

21. Grandparents Group (this is not a DSDN-run group)

22. Hearing Loss

23. Heart group 

24. Hydrops and Pregnancy 

25. IEP/IFSP support

26. Inclusion within the classroom (this is not a DSDN-run group)

27. Infantile Spasms

28. Loss Group

29. Medically Complex

30. More than one child with Ds

31. Mosaic Down syndrome

32. NICU support

33. Only Child Parenting

34. Over 40 at Diagnosis Moms

35. Parenting more than one child with a diagnosis 

36. Parenting as an LGBTQIA parent

37. Pregnancy after a child with Down syndrome

38. Pregnancy Group

39. Pulmonary Hypertension

40. Single parenting-mom

41. Single parenting-dads

42. Shop and Support DSDN

43. Sleep Support

44. Spanish speaking

45. Stay At Home Mom Group

46. Thyroid

47. Tube/feeding

48. Trach Group

49. Translocation Families

50. Twins

51. Under 40 Moms

52. Vision Group

53. Working Moms

FIND LOCAL SUPPORT

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• Global Down Syndrome Foundation

• NDSS 

NATIONAL SUPPORTS

• Down Syndrome Diagnosis Network

• Global Down Syndrome Foundation

• International Down Syndrome Coalition 

• International Mosaic Down Syndrome Association

• National Down Syndrome Congress

• National Down Syndrome Society

HEALTH LINKS:

• American Academy of Pediatrics Healthcare Guidelines

• Current Growth Chart for Children with Down Syndrome

• Find a Down Syndrome Specialty Clinic near you

WEBSITES:

• Unexpected: Stories of a Down Syndrome Diagnosis

  • Over 75 diagnosis stories free to download and read 

• Babycenter Down Syndrome Support Page

  • Anonymous online forum​

• Babycenter Down Syndrome Pregnancy Page

  • Anonymous online forum for expectant parents

• Down syndrome Blogs

  • A comprehensive list of blogs​

• Down Syndrome Pregnancy

  • Resources for those with a prenatal diagnosis​

• Find a Buddy Walk Near You

• Welcome to Holland essay

READING:

• Unexpected: Stories of a Down syndrome Diagnosis

• The Parent’s Guide to Down syndrome